The spinal cord is a thick bundle of nerves and tissues that extends from the base of the brain down the length of your back, it is protected by the bones that make up your spine.
The spinal cord is responsible for communicating two-way messages from your brain to your organs, muscles and skin.
It is estimated that approximately 2,500 people in the UK have a spinal cord injury (SCI) each year.
When the spinal cord is damaged or injured, some of the messages or impulses may be interrupted which can cause partial or total loss of feeling or movement in parts of your body. It is possible that you may also experience pain.
Usually loss of movement and feeling will occur below the level of the injury, for example an injury to the spinal cord at the neck will cause paralysis to a larger part of your body than an injury to the spinal cord in your lower back. However, it is important to be aware that the loss of sensation and movement will vary from person to person, even with those that have damaged their spinal cord in the same place.
The nature of a spinal cord injury means that as well as the physical impact, there are also emotional and psychological effects on the injured person and their family.
There are a number of charities available for people who have had a spinal cord injury, these can seem daunting at first but hopefully this will give some guidance and further information, please follow the links.
You may find that different charities are appropriate depending on your needs.
During the corona virus pandemic some of these charities have made some adaptations for virtual contacts.
This is a national UK charity providing support for people with a spinal cord injury – their statements are similar to the other charities and provide practical support through courses, when this is possible or virtual contact in many forms. Many people have found invaluable support from this and other charities.
Examples of support Back Up can give are: general support through phone lines or a virtual “Back Up Lounge”, mentoring for individuals and families, wheelchair skills, support via an app and You Tube channel, advice for work, children and young people. When possible they run courses including; work advice, city skills, incomplete walkers and also residential trips to explore outdoor activities.
This organisation is very much a “go to” organisation for all things related to Spinal Cord Injury. It provides support for patients and professionals, advocacy and guidance on a range of issues which might be bewildering. It provides a learning resource with a number of factsheets and training courses and finally the SIA is a respected body for campaigning on behalf of members. There are volunteers and staff who are regularly available to speak to people who are newly injured and their families about their spinal cord injury.
Another equally supportive Charity. They provide support and advice primarily around the following topics:
Housing, independent living, welfare benefits, access to technology, supporting your own fundraising with Your Fund. In Wales there is a very supportive peer independent living adviser based in Cardiff.
Regain is a smaller niche charity which supports people who have tetraplegia as a result of a sporting accident through offering grants -It is well worth getting in touch with them if this applies to you! Amongst other things, they run very successful fundraising cycle rides for both tetraplegic cyclists and able bodied riders.
Ageing is a natural process, that everyone of us will experience, whether you have has a spinal injury or not.
Some of the effects of ageing may present additional challenges if you have had a spinal cord injury, therefore being realistic and preparing as much as possible as you age, will enable you to manage the changes as they occur.
Keeping active and exercising is important for everyone. It has vital health benefits, can help you to manage day-to-day activities by keeping stronger and fitter and can improve your well-being.
Scientific researchers have recently put together guidelines to inform people with a spinal cord injury how much exercise is necessary for important fitness and health benefits.
Finding an exercise or activity that you enjoy is key, as you are more likely to continue with something if you enjoy it! Many gyms and leisure facilities have wheelchair accessible equipment, it is worth contacting your local leisure facility to see what they have to offer.
There are a number of accessible non sporting or cultural activities available around Cardiff and the Vale such as National Trust properties, museums or Parks with parking. When searching these they often have a heading of “accessibility” which will give you more information.
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The Welsh Spinal Cord Injury Rehabilitation Centre is based at the University Hospital Llandough, the spinal injuries unit is one of 12 designated units in the UK.
Patients are admitted to the unit from South, Mid and West Wales.
The centre provides in-patient rehabilitation for adults with a spinal cord injury due to various reasons including trauma, medical conditions and post surgical.
Appropriate patients can be referred to the Welsh Spinal Cord Injury Rehabilitation Centre via their consultant via the National Spinal Cord Injury Database.
Patients are admitted to the centre for rehabilitation once they have completed the acute stage of their injury and are ready to take part in an intensive rehabilitation programme which includes: