Keeping Me Well - Cardiff and Vale University Hospital

Children's Neuromuscular Physiotherapy

The specialist neuromuscular physiotherapy service is based at the Noah’s Ark Children’s Hospital for Wales.

A physiotherapist will be involved in the care and management of those patients with neuromuscular disorders across South East Wales.

Noah's Ark Children's Hospital for Wales, Ysbyty Plant Cymru

The different types of neuromuscular disorders include:  

  • Duchenne Muscular Dystrophy   
  • Becker’s Muscular Dystrophy   
  • Limb Girdle Muscular Dystrophy   
  • Congenital Muscular Dystrophy – Bethlem, Ullric, Rigid Spine, Merosin deficient   
  • Facioscapulohumeral Muscular Dystrophy   
  • Myotonic Dystrophy  
  • Peripheral Neuropathies – Charcot-Marie Tooth / Hereditary Sensory Motor Neuropathy  
  • Congenital Myopathies – Nemaline, Myotubular, Central Core    
  • Congenital Myasthenic Syndrome  
  • Spinal Muscular Atrophy – Type I, Type II & Type III 

Physiotherapy Treatments

Patients are normally reviewed alongside a paediatric neurologist and care advisor in a clinic to help support, advise and co-ordinate their local care. The specialist physiotherapist will review and clinically assess patients every 6-12 months to monitor the patients’ function and advise timely intervention with the wider multi-disciplinary team. The physiotherapist will also link with the patient and their family when they are having surgery.  

Therapy involvement  includes:   

  • Practical specialist advice for the patient, their family and school  
  • Exercise or stretching programmes   
  • Use of equipment such as walkers, standing frames, wheelchairs, orthotics   

Contact details

Contact: 02921 841960   

Keeping Me Well - Cardiff and Vale University Hospital

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