Children's Neuromuscular Physiotherapy

The specialist neuromuscular physiotherapy service is based at the Noah’s Ark Children’s Hospital for Wales.

Noah's Ark Children's Hospital for Wales, Ysbyty Plant Cymru

A physiotherapist will be involved in the care and management of those patients with neuromuscular disorders across South East Wales.

The different types of neuromuscular disorders include:  

  • Duchenne Muscular Dystrophy   
  • Becker’s Muscular Dystrophy   
  • Limb Girdle Muscular Dystrophy   
  • Congenital Muscular Dystrophy – Bethlem, Ullric, Rigid Spine, Merosin deficient   
  • Facioscapulohumeral Muscular Dystrophy   
  • Myotonic Dystrophy  
  • Peripheral Neuropathies – Charcot-Marie Tooth / Hereditary Sensory Motor Neuropathy  
  • Congenital Myopathies – Nemaline, Myotubular, Central Core    
  • Congenital Myasthenic Syndrome  
  • Spinal Muscular Atrophy – Type I, Type II & Type III 

Patients are normally reviewed alongside a paediatric neurologist and care advisor in a clinic to help support, advise and co-ordinate their local care. The specialist physiotherapist will review and clinically assess patients every 6-12 months to monitor the patients’ function and advise timely intervention with the wider multi-disciplinary team. The physiotherapist will also link with the patient and their family when they are having surgery.  

Therapy involvement  includes:   

  • Practical specialist advice for the patient, their family and school  
  • Exercise or stretching programmes   
  • Use of equipment such as walkers, standing frames, wheelchairs, orthotics   

Useful websites

Contact details

Contact: 02921 841960   

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