Children’s Physiotherapy for
Metabolic Bone Disease
This new service, based in Noah’s Ark Children’s Hospital for Wales, is for children in South and Mid Wales with metabolic bone disease such as:
- Rickets and osteomalacia
- Brittle Bone Disease
- Fibrous Dysplasia
This team includes a Physiotherapist, Occupational Therapist, Advanced Nurse Practitioner, Clinical Psychologist, Pharmacist, Dietician and Endocrine Consultants. The physiotherapist works alongside the team to assess, advise and educate patients and families, and refer onto physiotherapy colleagues working in local settings closer to home, as required.
We aim to work collaboratively and are keen to support local therapists, as well as children and their families to empower the management of these conditions.
There are useful resources and information leaflets for families and children with osteogenesis imperfecta on the Brittle Bone Society website, which are created by POINT, a national group we work with.