The 2021 NICE (National Institute of Clinical Excellence) guidelines advise that ME/CFS should be suspected if:
The four main symptoms of ME/CFS are:
* Post-Exertional Malaise or Post Exertional Symptom Exacerbation (sometimes called ‘payback’) is where physical, mental, sensory and emotional activities, or a combination of these, can cause a significant worsening of symptoms including exhaustion, pain, sensitivities and cognitive impairment.
People can also experience an increase in their other symptoms. The impact may be felt immediately, but it usually causes deterioration 12-48 hours after exertion. Symptoms are not significantly improved by rest and recovery may take a long time – a day, a week or longer.
Other symptoms can include:
The causes of ME/CFS are still being investigated although there is evidence that viral infections, surgery, emotional and physical trauma, and other factors can trigger the condition.
Cardiff and Vale University Health Board does not have a Specialist Service for ME/CFS but individuals living with the condition can access services that may support, and investigate specific symptoms. One service is the Live Well Rehabilitation Service that can support individuals living with ME/CFS manage their symptoms.
This website also has links that you can use to support management of some of the symptoms.
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